About MCC

Our Mission:

  • Educate the general public, healthcare providers, and stakeholders about  cCMV.
  • Prevent the incidence of cCMV through the promotion of specific hygiene practices among pregnant individuals. 
  • Screen newborns universally for cCMV, in order to improve the rate of diagnosis, especially children who are asymptomatic at birth.
  • Care for children born with cCMV by sharing resources with parents and guardians about treatment, early intervention services, long-term monitoring, and counseling.

Initiatives:

  • The group first met in January 2019 to explore and address issues to cCMV in Massachusetts.
  • A survey was created to collect data about current screening practices from all Massachusetts birthing hospitals.
  • The MCC’s website was developed (cmvmass.org) in order to share educational resources regarding cCMV.
  • In conjunction with Senator Joan Lovely, Representative Kay Khan, and Charles Group Consulting, a bill was filed in Jan. 2021 that would mandate universal screening and prenatal counseling in MA. 
  • Members published a study of Massachusetts cCMV screening practices in December 2022. Read it here..
  • In conjunction with Senator Joan Lovely, Representative Kay Khan, and Charles Group Consulting, we refiled a bill in Jan. 2023 that would mandate universal screening and prenatal counseling in MA. 
  • The website continues to reach out to the general public and pregnant individuals through the use of social media.
  • Members of the team continue to educate fellow medical professionals and educators.
  • Members of the team continue to develop clinical guidelines for the diagnosis and follow-up of children with cCMV.
  • Advocate for universal screening practice at MA birthing hospitals. 
  • Make cCMV a reportable condition in MA.
  • Make prenatal education of cCMV common practice among obstetrician offices in Massachusetts.
  • Continue to find and share resources to support parents and guardians of children living with a cCMV diagnosis.
  • Continue to support medical professionals and educators treating children with cCMV.
Meet the Team