Our Mission:
- Educate the general public, healthcare providers, and stakeholders about cCMV.
- Prevent the incidence of cCMV through the promotion of specific hygiene practices among pregnant women.
- Screen newborns universally for cCMV, in order to improve the rate of diagnosis, especially children who are asymptomatic at birth.
- Care for children born with cCMV by sharing resources with parents about treatment, early intervention services, long-term monitoring, and counseling.
Initiatives:
- The group first met in January 2019 to explore and address issues to cCMV in Massachusetts.
- A survey was created to collect data about current screening practices from all Massachusetts birthing hospitals.
- The MCC’s website was developed (cmvmass.org) in order to share educational resources regarding cCMV.
- A study about current Massachusetts cCMV screening practices is currently being conducted out of Mass General Brigham through the use of the survey.
- The website continues to reach out to the general public and pregnant women through the use of social media, blog posts, and educational videos.
- Advocate for universal screening practice at MA birthing hospitals.
- Make cCMV a reportable condition in MA.
- Make prenatal education of cCMV common practice among obstetrician offices in Massachusetts.
- Continue to find and share resources to support parents and children living with a cCMV diagnosis.