Our Mission:
- Educate the general public, healthcare providers, and stakeholders about cCMV.
- Prevent the incidence of cCMV through the promotion of specific hygiene practices among pregnant individuals.
- Screen newborns universally for cCMV, in order to improve the rate of diagnosis, especially children who are asymptomatic at birth.
- Care for children born with cCMV by sharing resources with parents and guardians about treatment, early intervention services, long-term monitoring, and counseling.
Initiatives:
- The group first met in January 2019 to explore and address issues to cCMV in Massachusetts.
- The MCC’s website was developed (cmvmass.org) in order to share educational resources regarding cCMV.
- In conjunction with Senator Joan Lovely and Representative Kay Khan, a bill was filed in Jan. 2021 that would mandate universal screening and prenatal counseling in MA. Senator Lovely & Representative Khan refiled the bill again in Jan. 2023.
- Members published a study of Massachusetts cCMV screening practices in December 2022. Read it here..
- In conjunction with Senator Joan Lovely and Representative Sally Kerans, cCMV legislation was refiled in Jan. 2025 that would mandate universal screening and prenatal education for cCMV in Massachusetts.
- The website continues to reach out to the general public and pregnant individuals through the use of social media.
- Members of the team continue to educate fellow medical professionals and educators.
- Members of the team continue to develop clinical guidelines for the diagnosis and follow-up of children with cCMV.
- Support the implementation of universal screening practice at MA birthing hospitals.
- Support prenatal education of cCMV practices among obstetrician offices in Massachusetts.
- Continue to find and share resources to support parents and guardians of children living with a cCMV diagnosis.
- Continue to support medical professionals and educators treating children with cCMV.